I posted before about having a seizure, since then I have had three grand mal seizures (right now I have a bruise on my forehead in the shape of the corner of my stove and one on my cheek the shape of the oven handle). I had to go to my neurologist today. He upped all my meds and added Klonopin, but he has now classified my epilepsy as "life threatening" and refractory (which means it is resistant to drugs). So now he wants me to go to Emory Hospital to have brain surgery to remove the damaged areas of my right temporal lobe.
I am so scared. The doctor wants to set me up to talk with a lady who also has epilepsy, she had the surgery in early November and has not had a seizure since. I would love to stop the seizures, but to shave my head, remove a flap of my skull, WAKE ME UP to test the area to see what does what and if they have to remove the whole area or just sever the neuron connections so I don't seize anymore.
My husband wasn't there when I seized, ironically he was at the lawyer's office seeing about my disability case. I woke up alone on the kitchen floor with a bleeding arm (I was washing dishes and fell holding a knife) and a bloody nose, and two huge goose eggs on my forehead and one on my cheek.
I don't remember it but apparently I got the phone and hit redial, which called my mom, and she called the lawyer's office, he came home and took me to the ER. Another concussion. My fifth one in two months. They want me to wear a helmet, which I absolutely refuse. Once I am on disability I will have Medicaid to pay for an MRI and the brain surgery, but I am terrified!!!
I don't want to have brain surgery. This is a nightmare...
I am so scared. The doctor wants to set me up to talk with a lady who also has epilepsy, she had the surgery in early November and has not had a seizure since. I would love to stop the seizures, but to shave my head, remove a flap of my skull, WAKE ME UP to test the area to see what does what and if they have to remove the whole area or just sever the neuron connections so I don't seize anymore.
My husband wasn't there when I seized, ironically he was at the lawyer's office seeing about my disability case. I woke up alone on the kitchen floor with a bleeding arm (I was washing dishes and fell holding a knife) and a bloody nose, and two huge goose eggs on my forehead and one on my cheek.
I don't remember it but apparently I got the phone and hit redial, which called my mom, and she called the lawyer's office, he came home and took me to the ER. Another concussion. My fifth one in two months. They want me to wear a helmet, which I absolutely refuse. Once I am on disability I will have Medicaid to pay for an MRI and the brain surgery, but I am terrified!!!
I don't want to have brain surgery. This is a nightmare...
