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Neuropathy

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JerseyGirl07093

Stick a fork in me
Joined
Jun 10, 2006
Messages
2,343
Location
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I know I'm not the only one here on Dims with neuropathy so I was hoping that we could share information and tips on dealing with it here. It is so hard to find other people that have neuropathy. The best place that I ever got help and information was from other people online. People who have this disease know more than the doctors I think.
Before I had neuropathy I had never even heard of it. Now I wish I had never heard of it because it is a living hell.
As for me, I was diagnosed about 5 years ago. I have idiopathic neuropathy, which means my doctor is an idiot and I'm pathetic. Ba dum bum. :p Actually, it means that they don't know the cause of my neuropathy. It started out as numbness in my toes and then came the tingling, burning, electric shocks, etc. as well as the numbness. I now have it in my feet and lower legs. Even though I take medication I still have a lot of pain. I am currently taking Neurontin and Tramadol. The doctors aren't really much help. They don't seem to know what to do. I worry about the disease progressing and getting worse. I don't even like to think about that sometimes.
I'd really like to hear from others that have neuropathy and what treatments you are using and what medication you take. What works and what doesn't work. Basically, I'd love to hear anything that you would like to share about this terrible condition. At least we will know we are not alone in our struggle.
 

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